Yesterday was a pretty good day. Max still had a fever. We had to monitor that. One of the Dr. wanted to make sure he wasn't dehydrated so she ordered 250 ml of water every hour for 4 hours and then they were giving him 500 ml of water every 6 hours. I think of the 2nd or 3rd 250ml of water the new nurse was like.....it's not going in your feeding tube.....Max said it's probably because my stomach is so full it's about to pop! LOL
We told them we really didn't think he needed the extra fluid. He was eating and drinking with meals and drinking when he took his medicines. He had so much going through his output was all but clear.
They did give him some ibuprofen to help keep the fever down. The threat is if it gets to high they will send him to the university. I believe it has something to do with the bladder issue.
We woke up this morning and he was fine! No fever and feeling pretty good.....which is a great thing because his schedule is so full of therapy because of missing Monday and appointments Wed & Thurs.
Pray for a good report today and tomorrow. God is working out some issues for us behind the scenes and I can't tell you what a blessing it has been. One day over a cup of coffee or maybe over a huge celebration we can tell you what's going on. There are so many things you never dream you would need to try and make your life even close to normal again. So many little details change just so you can be comfortable in your own home.
I'll let you know more as soon as we do. We are waiting for transportation to the hospital for his 1:00 appointment and Max is taking a nap!