I had no internet access last night so I couldn't tell everyone what was going on over here.
Max had various therapy yesterday ~ each day more and more stuff is coming up out of his lungs. He is getting stronger in his arm. It will probably be a while in his left one. When he raises it up a lot, his shoulder really hurts. We have been putting an ice pack type of thing on it, and it seems to be helping.
His nurse came in today and was doing some stuff early in the morning & she told him that he could sing her a lullaby. He started singing,
"I am blessed, oh I am blessed
when I rise up in the morning, when I lay my head to rest"
I don't think she was ready for that one. The weekend Doctors came by early in the morning and after they asked Max all their questions, they asked Max if he had any questions. He asked them if he could do anything for them. They weren't sure what to say to him so they left.
He enjoyed being outside last night. We watched the moon rise and enjoyed the breeze. His nurse this morning was saying " I saw you love birds outside last night" It's amazing how much just holding hands enjoying the evening seems like a luxury. My prayer is we remember this time and never take our time together for granted. I'm ready for our family to be together, figuring this thing out and going forward.
Today was a day of enjoying the outside. He was paged today to come back to his room so he could get his tube feeding. If you come looking for him and he's not in his room, just check the courtyards or the side of the building. I'm thankful this didn't happen in the winter or he would be freezing my behind off outside. Weather? What weather? He wouldn't notice.
I'm sure I sound like a broken record but he sure does enjoy when people come by and see him. He sometimes makes more of an effort for other people than for me. We will be going to the University for an appointment Thursday at 1:00, I think to take the stitches out of his arm. We have another appointment Aug 31st. I'm hoping it's to take the collar off of him.
It's hard to not get ahead of God. I'm trying to figure out what I need to do to bring him home but the possibilities are endless. The Physical & Occupational therapists keep telling me to hold on, my needs now may be totally different then our needs in 3 months or 6 months. So will he be in a motorized wheelchair, will he be in a regular wheelchair, will he be walking? To much thinking, to much thinking.....thank you Lord that you are with us walking out each day at a time. You know Lord that I am a planner & want to know so much information and it's sometimes hard for me to wait and do each day at a time. But I will, I will ~ you have not let us down yet and I know that you never will.
Enjoy the coolness of the evening and the kiss of the sun in the morning. Tomorrow is a new day and we look forward to what it will bring.