Sunday Afternoon Written October 2, 2011 1:57pm
Did it really take that long to get back on the computer to update you? Why yes it did. I think this is the first time I've set down since coming home. Coming home was the easiest part....... Max slept most of the way. It's hard to talk with someone who is behind you and it's hard to hear in the van. It still bothers him when we travel, he feels every bump and it hurts his back.
We got everything home and then we began the process of figuring out where everything goes. The house is topsy turvy....the kids did a good job of getting things out of the way for the flooring but now I have to figure out what to keep and what to let go of. We just don't have the room for a lot of stuff right now. Max's bed, lift and wheelchair take up a lot of room. We put up a TV tray when he's sitting in one of the front room chairs. I think we need to invest in a chair that can come recline back and has a footrest. Buying new furniture really isn't what I have room for on the budget we have right now.
I'm glad I was as prepared as I was at Rusk. I thought getting up early was bad enough but now I have to get the coffee, breakfast & meds going in addition to the morning things we were doing to begin with. I really wanted to go to church this morning but I may have to start at 4:00 to get everything done! LOL
Max is trying to help but it's hard for him to reach things. With one hand that functions, its hard to cut up things, hold things, etc.... We will go in November to see if they can perform surgery on the nerves to get the muscle function back into his left hand. He will be able to do so many more things for himself if we can do that.
I spent most of yesterday trying to make a cushion for the back of his wheelchair. It sits way back and there is a gap between the cushion and the back of the wheelchair cushion. Apparently one of the sewing machines was broke when I was gone and the other one didn't want to work properly. It was a long and frustrating process but we finally got something that I think will help him feel better in his chair.
The nurse came in the afternoon and went over what services he will be getting. A nurse will come by, a home health aide will come by, a occupational therapist will come by and a physical therapist will come by. That's a whole lot of people coming to your house to help out. I guess we are going to no longer be somewhat private people......at least for a while! LOL
We did go for a small walk yesterday down the gravel road. All the bumps hurt his back so it's slow rolling. Hopefully I'll get enough sorted through the bed is clean and then I can work on clearing out the laundry room so I can get some clothes washed.
The neat thing is just when I feel like I'm going to collapse in a heap, God lifts me up, blows a fresh breath in me, reassures me I can do this and I'm ready to move forward. I'm blessed to have great children and even more blessed to have a wonderful husband. As frustrating as this is for me, I'm sure it's more frustrating for him.
We had our first family meeting last night and I think we'll have to have them at least 2 a week at first. I think maybe the first will be a what is and isn't working, how are you feeling meeting and the second will be how we can work on the areas that aren't working. It's to easy to get sidetracked on working to fix it when we should be talking about how we feel ~ right or wrong.
Walking through this one step at a time, God is in control, He's promised He will not be delayed. He's already written this story and we are just walking through it. I pray we walk in the direction that is pleasing to Him.
I know it will be different being home, it's not as convenient to come by and visit ~ we will miss that. If your traveling through California, give us a call and drop on by!!
Did it really take that long to get back on the computer to update you? Why yes it did. I think this is the first time I've set down since coming home. Coming home was the easiest part....... Max slept most of the way. It's hard to talk with someone who is behind you and it's hard to hear in the van. It still bothers him when we travel, he feels every bump and it hurts his back.
We got everything home and then we began the process of figuring out where everything goes. The house is topsy turvy....the kids did a good job of getting things out of the way for the flooring but now I have to figure out what to keep and what to let go of. We just don't have the room for a lot of stuff right now. Max's bed, lift and wheelchair take up a lot of room. We put up a TV tray when he's sitting in one of the front room chairs. I think we need to invest in a chair that can come recline back and has a footrest. Buying new furniture really isn't what I have room for on the budget we have right now.
I'm glad I was as prepared as I was at Rusk. I thought getting up early was bad enough but now I have to get the coffee, breakfast & meds going in addition to the morning things we were doing to begin with. I really wanted to go to church this morning but I may have to start at 4:00 to get everything done! LOL
Max is trying to help but it's hard for him to reach things. With one hand that functions, its hard to cut up things, hold things, etc.... We will go in November to see if they can perform surgery on the nerves to get the muscle function back into his left hand. He will be able to do so many more things for himself if we can do that.
I spent most of yesterday trying to make a cushion for the back of his wheelchair. It sits way back and there is a gap between the cushion and the back of the wheelchair cushion. Apparently one of the sewing machines was broke when I was gone and the other one didn't want to work properly. It was a long and frustrating process but we finally got something that I think will help him feel better in his chair.
The nurse came in the afternoon and went over what services he will be getting. A nurse will come by, a home health aide will come by, a occupational therapist will come by and a physical therapist will come by. That's a whole lot of people coming to your house to help out. I guess we are going to no longer be somewhat private people......at least for a while! LOL
We did go for a small walk yesterday down the gravel road. All the bumps hurt his back so it's slow rolling. Hopefully I'll get enough sorted through the bed is clean and then I can work on clearing out the laundry room so I can get some clothes washed.
The neat thing is just when I feel like I'm going to collapse in a heap, God lifts me up, blows a fresh breath in me, reassures me I can do this and I'm ready to move forward. I'm blessed to have great children and even more blessed to have a wonderful husband. As frustrating as this is for me, I'm sure it's more frustrating for him.
We had our first family meeting last night and I think we'll have to have them at least 2 a week at first. I think maybe the first will be a what is and isn't working, how are you feeling meeting and the second will be how we can work on the areas that aren't working. It's to easy to get sidetracked on working to fix it when we should be talking about how we feel ~ right or wrong.
Walking through this one step at a time, God is in control, He's promised He will not be delayed. He's already written this story and we are just walking through it. I pray we walk in the direction that is pleasing to Him.
I know it will be different being home, it's not as convenient to come by and visit ~ we will miss that. If your traveling through California, give us a call and drop on by!!
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