Friday Morning Written August 12, 2011 9:01am
Yesterday was a pretty good day. Max was up in his chair around 9 am and I think he wanted out of it around 8 pm. He loves being able to go outside and enjoy the fresh air. The only drawback is we have to watch because people go out front to smoke and it's hard for him to breath and there really aren't many places for others to sit.t
He was learning to pick things up with the left arm. He really doesn't have a lot of feeling in hand yet so they showed him how to get a pincher movement with moving his wrist. He was picking up blocks until his shoulder really started hurting.
He has classes at least 5 days a week on spinal cord injuries. They cover a variety of topics. There was only 1 other fellow there yesterday but it was neat because he has been home and has come back for more rehab. He had a different perspective because he has similar function that Max has now.
Max loves having visitors. It's great for him because he makes a bigger effort others are here. His cousin Paul visited from Kansas yesterday. That was a delight because we don't get to see our family on that side as often as we would wish.
Later in the evening it wasn't the best evening we've had. When you have spinal cord injuries and loss of feeling you still have to process your food and liquids. We will be learning a whole new process to get stuff out of your body. Last night Max was on his side for quite a while and his back really, really started hurting him. He said on a scale of 1-5 it was a 28. Even though he was in pain, I later told him the bad thing about being away from the house was my system gets all out of whack and I get constipated more easily ~ He looked at me and said "I know someone who can help you with that" Heavy Sigh......this is a whole new reality for both of us. Sometimes when the big picture implications dance around my mind, it's not easy to comprehend. To many how will we, what if we can't..........then I have to remind myself that God said one day at a time. I don't know what Max will be doing in a week. Max doesn't know what he will be doing in a week. Only God knows what Max will be doing in a week. So I'm doing my best to try and not run ahead of him.
Today we have already had physical therapy in at 7:15. The the Doctors, then respitory, then the nurse. They are going to try and do a speaking cap on his traech today. That way he won't have to hold his finger of the end to speak. Please be in agreement with me that he will be able to cough up stuff to his mouth and not have to be suctioned. The secretions in his lungs aren't as many but they are still a lot.
He will be open from 12 - 2 today and then after 3:30 he is free. I'm looking forward to a great day ~ I pray your day is wonderful also.
oops, I almost forgot ~ don't know how. We had an opportunity to see a picture of the tree that did the damage. All I can say is wow, it's only by God's grace that he is still alive. That phone call I got from Glen could have been a lot harder to deal with.
As I count my blessings, take time to count yours. We take so much for granted, walking, talking, swallowing. That our loved ones will always just be there. Take a minute and imagine that they weren't there. What would you say, what would you like them to know? Tell them every day ~ that way you won't ever be in that position of saying I wish I had........
Yesterday was a pretty good day. Max was up in his chair around 9 am and I think he wanted out of it around 8 pm. He loves being able to go outside and enjoy the fresh air. The only drawback is we have to watch because people go out front to smoke and it's hard for him to breath and there really aren't many places for others to sit.t
He was learning to pick things up with the left arm. He really doesn't have a lot of feeling in hand yet so they showed him how to get a pincher movement with moving his wrist. He was picking up blocks until his shoulder really started hurting.
He has classes at least 5 days a week on spinal cord injuries. They cover a variety of topics. There was only 1 other fellow there yesterday but it was neat because he has been home and has come back for more rehab. He had a different perspective because he has similar function that Max has now.
Max loves having visitors. It's great for him because he makes a bigger effort others are here. His cousin Paul visited from Kansas yesterday. That was a delight because we don't get to see our family on that side as often as we would wish.
Later in the evening it wasn't the best evening we've had. When you have spinal cord injuries and loss of feeling you still have to process your food and liquids. We will be learning a whole new process to get stuff out of your body. Last night Max was on his side for quite a while and his back really, really started hurting him. He said on a scale of 1-5 it was a 28. Even though he was in pain, I later told him the bad thing about being away from the house was my system gets all out of whack and I get constipated more easily ~ He looked at me and said "I know someone who can help you with that" Heavy Sigh......this is a whole new reality for both of us. Sometimes when the big picture implications dance around my mind, it's not easy to comprehend. To many how will we, what if we can't..........then I have to remind myself that God said one day at a time. I don't know what Max will be doing in a week. Max doesn't know what he will be doing in a week. Only God knows what Max will be doing in a week. So I'm doing my best to try and not run ahead of him.
Today we have already had physical therapy in at 7:15. The the Doctors, then respitory, then the nurse. They are going to try and do a speaking cap on his traech today. That way he won't have to hold his finger of the end to speak. Please be in agreement with me that he will be able to cough up stuff to his mouth and not have to be suctioned. The secretions in his lungs aren't as many but they are still a lot.
He will be open from 12 - 2 today and then after 3:30 he is free. I'm looking forward to a great day ~ I pray your day is wonderful also.
oops, I almost forgot ~ don't know how. We had an opportunity to see a picture of the tree that did the damage. All I can say is wow, it's only by God's grace that he is still alive. That phone call I got from Glen could have been a lot harder to deal with.
As I count my blessings, take time to count yours. We take so much for granted, walking, talking, swallowing. That our loved ones will always just be there. Take a minute and imagine that they weren't there. What would you say, what would you like them to know? Tell them every day ~ that way you won't ever be in that position of saying I wish I had........
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