How much better when teaching the kids....
Saturday AFternoon again Written September 17, 2011 4:46pm
How much better when teaching the kids....
0 Comments
Saturday Morning Written September 17, 2011 10:36am
Friday was a good day. I had to run home and pick up the kids, do lots of errands and get back for Zack's surprise birthday party here at Rusk. That's 2 out of 3 children who have celebrated their birthday with their Dad at Rusk. I pray that Rheanna doesn't have to do the same! Zack was really surprised for his birthday. It was fun seeing him be the center of attention. It's hard to believe that he's 17 years old.....how the time flies. Max had a busy day of working hard and was in a lot of pain with his hand Friday night. The nerves are waking up and sometimes they really hurt. Max says its like a red hot poker going down his little finger and there is really not much you can do about it. We were running a little late getting back to Rusk. It's hard to be somewhere at a specific time when you can't tell everyone why you have to be somewhere at a certain time without them figuring out your planning something for them. Today is our 23 wedding anniversary. It's fun to think back and remember what we were doing at different points of this day. Hard to believe that it's been that long, thankful we are celebrating this day together. A few times along the way I wasn't sure we were going to get to this day. God says he has it all under control and I believe Him. He hasn't failed us yet. What Satan meant for evil God has turned around. Max has speech therapy at 11:00 and then he's going to make some chili for a cookoff here at Rusk on Monday. He's looking forward to that. He hasn't cooked since July 19th and he's more than ready! Hopefully I'll get to taste a little before it goes downstairs for everyone else to taste. Enjoy your day, count your blessings ~ it's hard when your in the middle of every day life. All the little issues easily creep up upon you and then your distracted, busy & take people for granted. Choose today to thank God for his blessings, choose today to tell those you love, that you love them! If you see my babies out and about today ~ tell them we love them very much and will see them soon! Thursday Night Written September 15, 2011 7:43pm
Today was a much better day! He still doesn't like his wheelchair much, hopefully the other one will be fixed or his will come quickly. He really likes the new bed. It's harder to move him up and down but it's worth it so he sleeps better. Well, between when I wrote the first part and now Max got a new bed. This bed will sit lower so we can do transfer from his chair to the bed. Basically it means we use a small board to slide him from one place to the other. That way we won't have to use the hoyer lift as often once I learn how to do that effectively. This morning Dr. Acuff came in and indicated we "may" get to stay another week. I'm not sure how I feel about that one. We will wait and see how that turns out. The longer we stay, the more we learn, the stronger Max gets., etc., etc., etc.... I'm just ready to get home. Maybe I'll feel better in the morning. One nice thing about the new bed is it will be as low as the fold out bed. So I may be able to sleep a little closer to Max tonight. That will be wonderful!! We had a local auto company bring a van over so we could test drive it. He brought it over and told us they were still working on it. He showed us the lift but didn't feel comfortable letting max up on it. He told me I could drive it if I wanted....but wait, it didn't have any plates on it.... So, we got to look at the van ~ might be nice once they fix it up. Nothing like having 4 vehicles and not a one can take him home. :o( Or even if I could get him into it, I couldn't get his wheelchair into it. Tomorrow should will be a great day. I'm running home to pick up the kids and bringing them back here to Rusk. They have been home this week cleaning it up for us. They painted the front room kitchen & dining room. They were going to paint the bathroom but ran out of paint. They also went through some toys and priced them to take up to Sweet Buy & Buy. They are doing what they can to declutter and make room. Tomorrow night I plan to bring the kids around 6:00 to surprise Zack for his birthday. We are going to have cake and ice cream ~ come on over and share in the celebration if your in town. I think we will have everyone in the day room if it's open. That way we can go to Max's room and then to the day room.to surprise him. Max's schedule tomorrow is: 9:30 - 10:00 Physical Therapy 10:00 - 10:30 Newsgroup/speech therapy 10:30 - 11:00 Occupational therapy 11:00 - 12:00 Spinal Cord Group 12:30 - 1:00 Occupational therapy 1:00 - 1:30 Speech therapy 1:30 - 2:00 Physical therapy Maybe we'll see you tomorrow night!! Wednesday Late AFternoon Written September 14, 2011 4:31pm Today was .... interesting. LOL Max was having trouble with his wheelchair so he had BRandon look at it. I think when Max raised the chair and pulled the cord, it may have messed a cord up. When Brandon tried to fix it, it broke... :o( So Max had to get into a different chair and he really doesn't like it. They changed the control to his left hand and between the control and the left hand he was getting frustrated. He also was getting tired of the air bed he was on. Last night he needed to have some stuff changed with his bladder. We started at 6:00 trying to get everything done but it was a night where everyone was busy and no one was coordinated. I ended up doing the majority off what was needed to be done but some of it I just couldn't do because I'm not really a nurse ;o) It was 11:00 pm before I got everything done so I could go to bed. He got up this morning and really wasn't in a good mood. He didn't like the chair, he didn't like the bed..... Thank you Lord, his new bed top that was ordered came in today and they changed it out for him. Brandon tweaked the controls on the wheelchair and that made the chair work better. This afternoon he was trying some new stuff ~ like the standing frame. Right now the biggest thing that is slowing us down is his back. He's really starting to feel it more. We are back on track for renovations on the house. Waiting for things to happen with certain companies really slowed our progress down. We could have been done and not be worrying about if it will be done before he goes home. Oh well, he will be getting home one way or another. He's sleeping right now, waiting for supper to come. He's supposed to talk with some occupational students around 5:30 about his injury and what he's going through. Hopefully that won't take to long because his Mom and sister are coming down to see him. Hopefully tomorrow will be a much better day! Tuesday Afternoon Written September 13, 2011 12:42pm
Well, we didn't get to have the bladder test today. We went over there and they did a test and there was an infection in his bladder. So, we have to wait for week ~ as long as he's on antibiotics they can do the test. I'm not sure what is going on, last night and again today at lunch his stomach swelled up. I'm hoping it's just gas and not anything to do with the bladder deal. It's time for speech therapy, then occupational therapy & then physical therapy. We will be busy until at least 4:00 today! Monday Night Written September 12, 2011 7:17pm
Well, well, well, we went to the surgeon today and the incision in his back is getting better. We are going back next Monday so she can check to make sure it is still doing good. We mentioned to the therapists that she doesn't want him to bend in his mid-back and now they are not sure what therapy he can do safely. They were discussing this when we got back today. Transferring on a board requires him to bend over mid back, standing on the eliptical standing frame requires him to put weight on his broken leg and he's not supposed to do that. They were discussing if it might not be better for him to go home until the restrictions are lifted. Life is always an adventure......you never know from one day to the next what life will bring! But as long as we are feeling good and together it's all good. Tomorrow we will be going to the university for a bladder study. We leave at 9:30 and we are praying for good results. I am thankful that God is in control and we don't have to worry about what is going on. It will all come together in God's perfect timing. I'll let you know more as we know more! Sweet dreams everyone. Monday morning Written September 12, 2011 8:06am
We are up and running today. Bowels, exercise and breakfast done. Max has a lot of coughing this morning - we were outside a lot yesterday. Our schedule today is: 9:30 - 10:00 speech therapy 10:00 - 11:00. Occupational therapy 11:00 - 12:00. Spinal cord injury group 1:30 - 4:00 dr appointment at university 4:00 - 4:30. Speech therapy 4:30 - 5:30 physical therapy A very busy day ahead! Sunday Morning Written September 11, 2011 9:25am Another Sunday and we are missing our church family. Ray's birthday was the 29th of August, Zack's is the 16th of Sept, our anniversary is the 17th. Sure wishing we were home instead of here.......but thankful we are here and not missing Max. While things may not always be what we want, I know they could always be worse. So we choose this day praise, we choose this day life. Lord, let me hear what you would say to me & be a blessing to someone. I know that you know the ending of our story from the beginning. You hold all our hopes and dreams and know our hearts. Listening to Rich Mullins Step by Step Sometimes the night was beautiful Sometimes the sky was so far away Sometimes it seemed to steep so close You could touch it but your heart would break Sometimes the morning came too soon Sometimes the day could be so hot There was so worth much left to do But so much you'd already done Oh God, You are my God And I will ever praise you Oh God, You are my God And I will ever praise you And I will seek You in the morning And I will learn to walk in Your ways And step by step You'll lead me And I will follow You all of my days Sometimes I think of Abraham How one star he saw had been lit from me He was a stranger in this land And I am that no less than he And on this road to righteousness Sometimes the climb can be so steep I may falter in my steps But never beyond Your reach Oh God, You are my God And I will ever praise You Oh God, You are my God And I will ever praise You I will seek You in the morning And I will learn to walk in Your ways And step by step You'll lead me And I will follow You all of my days And I will follow You all of my days And I will follow You all of my days And step by step You'll lead me And I will follow You all of my days Here is a you tube clip ~ http://www.youtube.com/watch?v=J2KOCgC8DnU Looking forward to a beautiful day, hopefully we will get out and enjoy the fresh air some. Written September 9, 2011 8:13am
Here's Max's schedule for today. 9:30 - 10:00 Speech Therapy 10:00 - 11:00 Occupational Therapy 11:00 - 12:00 Spinal Cord Injury Group 2:00 - 3:00 Physical Therapy Please keep the family in prayer. We are trying to figure out how to get the kids home and still find a way for them to come and see their Dad. Been to long away from home and it makes it hard. How do you decide to leave......need to learn things with Max for therapy and hate to leave him bored with no company when he's through with therapy. Choices, choices, choices.... |
AuthorWrite something about yourself. No need to be fancy, just an overview. Archives
April 2015
Categories |